The Rare Mind by André Correia

Podcast

Explain. Connect. Empower. Rare Mind Talks

The vehicle, not the destination. Conversations that carry the advocacy message further by simplifying complex topics and connecting experts to improve lives in rare diseases.

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Updated regularly
Roughly 30 minutes each.
Who I talk to
Parents turned founders, geneticists, biotech CEOs, data leaders.
What we cover
Education, AI and data applied to rare disease care and research.

Latest episode

EP 14 July 16, 2026 · 31:57

Between Care and Cure, Building What Doesn’t Exist Yet

with Erika Stariha

Erika Stariha shares her journey from undiagnosed parent to European foundation founder. Her son's eight-year wait for a SATB2 diagnosis shaped everything that followed. Consequently, she built a foundation focused on systems, not just symptoms.

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00:00 / 31:57
Cover art for Between Care and Cure, Building What Doesn’t Exist Yet

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Past episodes

Every conversation, newest first. Play any of them right here.

13
June 18, 2026

Designing Education Around People, Not Conditions

with Katarzyna Świeczkowska

In "Designing Education Around People, Not Conditions", I speak with Katarzyna Świeczkowska (a.k.a. Kasia), rare disease advocate, mother, and founder of an innovative inclusive school in Poland. Together, we explore how the F-Words for Child Development (Function, Fitness, Fun, Family, Friends, and Future) are transforming education for children with complex needs.

00:00 / 37:59
12
December 11, 2025

From Genes to Powerful Answers

with Célia Azevedo Soares

"From Genes to Powerful Answers" takes us on a guided journey through the world of genetics with Célia Azevedo Soares. We explore why genes matter so deeply in rare diseases and how our understanding of them has evolved to shape the entire path from suspicion to diagnosis.

00:00 / 40:18
11
October 9, 2025

How to Break Data Silos in Rare Diseases

with Francisco Aguiar Watch on YouTube

In How to Break Data Silos in Rare Diseases, Francisco Aguiar from BI4ALL joins me to explore how data and AI can truly reshape the rare disease ecosystem.

00:00 / 28:21
10
September 25, 2025

Hope and Leadership: Uncharted Lessons

with Ada Lio

In this episode, I talk with Ada Lio, mum of Lukie, founder of lukie.org, and board member at the ZTTK Son-Shine Foundation. Joining me from Boston, Ada shares her perspective on hope and leadership in rare diseases, offering uncharted lessons from her journey as both a parent and a leader in the community.

00:00 / 29:11
09
September 11, 2025

Treating the Patient, Not the Disease

with Richard Novak · recorded live at the ZTTK Foundation Conference

In this Rare Mind Talks episode, I sit down with Richard Novak, CEO of Unravel Biosciences, to explore how RNA provides real-time insight into the body’s actions, while DNA remains static. With the motto of treating the patient, not the disease, this shift in approach changes how we understand rare diseases.

00:00 / 29:53
08
July 17, 2025

From Adversity To Powerful Global Leadership

with Pat Furlong

Going from adversity to powerful global leadership. Pat's story reminds us that behind every movement is a human heart, broken but beating louder than ever.

00:00 / 27:43
07
July 3, 2025

Chasing My Cure: A New Playbook (Hope And Data)

on the work of Dr. David Fajgenbaum

This episode explores how Dr. Fajgenbaum, co-founder of Every Cure and CDCN, used precision medicine, drug repurposing, and patient-led research to find a treatment. Not just for himself, but for others. We discuss the power of structured data, the potential of AI, and what it means to fix not just the science, but the system.

00:00 / 09:42
06
June 19, 2025

How to Unlock a Rare Community?

with Ana Rita Moreira

A mother turned global advocate, Ana Rita talks about how her son's ultra-rare diagnosis sparked a powerful mission. She didn't wait. She acted. She went from diagnosis shock to launching a research-focused alliance.

00:00 / 31:42
05
June 5, 2025

Patient-Led AI for Better Health

with Bruno Amaral

"Patient-Led AI for Better Health" is the focus of this powerful episode with Bruno Amaral, creator of Gregory, an AI-driven bot. Bruno, built Gregory to help patients find relevant, trustworthy research. The bot filters studies for better outcomes. More importantly, it helps patients, doctors and researchers save time by summarising complex findings into clear, useful insights.

00:00 / 29:06
04
May 22, 2025

Can Data Standards Unlock Better Solutions?

with Ronald Cornet

In today's episode, our guest Ronald Cornet, an expert in health informatics, explains why inconsistent data causes harmful delays in diagnosis and care. Can data standards unlock better solutions?

00:00 / 31:52
03
May 8, 2025

Can AI Make Healthcare More Human?

with Pedro Gouveia

In this episode, our guest Pedro Gouveia explores how AI and data are not just advancing oncology and rare disease care, but also challenging us to ask: "Can AI make healthcare more human?" We examine both the promise on personalised diagnostics, drug repurposing, connected care, and the roadblocks, including weak data governance and fragmented systems. Pedro shares practical, real-world insights while calling attention to where the sector must catch up. At the heart of it all is a recurring theme: for AI to truly transform healthcare, it must strengthen trust, empathy, and the human connection

00:00 / 40:49
02
April 24, 2025

What Are We Forgetting?

with José Videira

Our guest, José Videira, explores how these technologies can accelerate diagnosis and treatment, but also reminds us to pause and ask, “What are we forgetting?”

00:00 / 28:36
01
April 8, 2025

Rare Mind Talks

with André Correia

"Rare Mind Talks" podcast explores how AI, data, and innovation are transforming healthcare for rare diseases. Hosted by André Correia, a digital transformation leader and rare disease advocate, it aims to simplify complex topics, inspire research, and connect experts to improve lives.

00:00 / 04:04

Come on the podcast

If you work in rare disease research, care, policy or advocacy, and have something the community should hear.

Get in touch @theraremindtalks