Events & Projects
Inspired by my son’s journey with an ultra-rare condition, I use my voice, network, and digital leadership to empower patients, speed up diagnoses, and ensure no one is left behind.
Continue the conversationEvents · Where I show up
Conferences, programmes, and community spaces. A trail of advocacy.
Attended Scientific Innovation & Translational Research at EURORDIS Open Academy as a European Patient Advocacy Groups (ePAGs) representative, deepening advocacy, genetics, and data skills alongside rare disease leaders across Europe.
Guest lecturer for six consecutive years at the Global Pharma executive education programme by GenH and Católica Medical School. Shared my rare disease journey with industry executives, highlighting patient data and a bold vision for the future.
Shared the importance of young talent in shaping a more inclusive, data-driven healthcare system for rare diseases, a programme by GenH and Instituto Superior Técnico (IST).
Moderated webinars on rare diseases, innovation, society, technology, and advocacy, including sessions on the future of rare diseases in Portugal and community conversations on patient-centred change.
Regular speaker at patient advocacy events across Europe, sharing the journey of a father navigating ultra rare disease, SERaro's mission, and the power of community voice.
Fabry International Network (FIN). Explored the significance of digital in rare diseases and how advocacy requires digital leaders to thrive in the digital age.
Google Cloud Portugal. Moderated a roundtable on emerging technologies in healthcare, exploring the future of patient-centred digital solutions.
Featured interview on ultra rare diseases and my journey as a father. My son has ZTTK Syndrome. We explore awareness and technology's role.
Ministry of Foreign Affairs. Moderated a roundtable with investors and public and private sector leaders on digital health.
Projects · What I build
Technology is revolutionising healthcare. These projects connect innovation
with advocacy globally.
A place where I discuss technology, innovation, and industry trends. Author of an ebook examining whether the pharmaceutical industry embraced Cloud, Mobility, and Strategic Big Data and Analytics.
Read Free eBook (EN) →Co-founded a podcast where Technology and Health intersect. Informal interviews creating an open space for discussion, focused on Portugal and beyond.
Listen (PT / EN) →Organised and hosted an educational series demystifying genetics and rare diseases, bringing experts together to explain complex concepts clearly for families and professionals.
Co-founded and co-hosted a conference on strategic and technological opportunities for Portugal as a European Centre of Excellence in healthcare.
Learn more →Topics
Father of a child with an ultra rare disease. Digital transformation leader. Host of Rare Mind Talks.
For events, panels, lectures, or a project worth building together.
