by André Correia

More about me
As the father of a boy with an ultra-rare disease, I’m committed to using my voice, experience, and network to drive meaningful change on accelerating diagnosis, empowering patients, and shaping a future where no one is left behind.
I’m André Correia, the father of a boy with an ultra-rare disease, and a digital transformation leader with over two and a half decades of experience.
My passion lies in technology, innovation, and advocating for Rare Diseases. I reside in Portugal, having spent a little over 15 years abroad. I’m actively involved in patient advocacy, particularly for ultra-rare diseases.
In brief
Father, advocate, and digital leader focused on ultra-rare disease.
Starts with
Father to a child with ZTTK Syndrome
Focus
Ultra rare and undiagnosed patients
Experience
25+ years in digital transformation
Advocacy
European Patient Advocacy Groups (ePAGs) representative and Vice-President at SERaro