In “Designing Education Around People, Not Conditions”, I speak with Katarzyna Świeczkowska (a.k.a. Kasia), rare disease advocate, mother, and founder of an innovative inclusive school in Poland. Together, we explore how the F-Words for Child Development (Function, Fitness, Fun, Family, Friends, and Future) are transforming education for children with complex needs.

Kasia explains why schools must move beyond deficits and focus on strengths, aspirations, and participation. We examine how communities can become more inclusive through action rather than intention alone, and explore one of the biggest challenges facing families: preparing young people with rare diseases for adulthood, independence, and a meaningful future.

Rare Mind Talks podcast explores how AI, data, and innovation are transforming healthcare for rare diseases. Hosted by André Correia, a digital transformation leader and rare disease advocate, this Podcast aims to simplify complex topics, inspire research, and connect experts to improve lives.

Learn more at https://www.theraremind.com or
Follow us on Instagram @theraremindtalks