Tag: technology


  • 10: Hope and Leadership: Uncharted Lessons (with Ada Lio)

    In this episode, I talk with Ada Lio, mum of Lukie, founder of lukie.org, and board member at the ZTTK Son-Shine Foundation. Joining me from Boston, Ada shares her perspective on hope and leadership in rare diseases, offering uncharted lessons from her journey as both a parent and a leader in the community.

  • 09: Treating the Patient, Not the Disease (with Richard Novak)

    In this Rare Mind Talks episode, I sit down with Richard Novak, CEO of Unravel Biosciences, to explore how RNA provides real-time insight into the body’s actions, while DNA remains static. With the motto of treating the patient, not the disease, this shift in approach changes how we understand rare diseases.

  • 08: From Adversity To Powerful Global Leadership (with Pat Furlong)

    Going from adversity to powerful global leadership. Pat’s story reminds us that behind every movement is a human heart, broken but beating louder than ever.