Going from adversity to powerful global leadership. Pat’s story reminds us that behind every movement is a human heart, broken but beating louder than ever.
This episode explores how Dr. Fajgenbaum, co-founder of Every Cure and CDCN, used precision medicine, drug repurposing, and patient-led research to find a treatment. Not just for himself, but for others. We discuss the power of structured data, the potential of AI, and what it means to fix not just the science, but the system.
A mother turned global advocate, Ana Rita talks about how her son’s ultra-rare diagnosis sparked a powerful mission. She didn’t wait. She acted. She went from diagnosis shock to launching a research-focused alliance.