EMPOWERING RARE MINDS THROUGH KNOWLEDGE
Discover curated resources to deepen your understanding of rare diseases and advocacy.
Ep. 11: How to Break Data Silos in Rare Diseases [🇺🇸]
Francisco Aguiar from BI4ALL joins me to explore how data and AI can truly reshape the rare disease ecosystem. He explains why data integration, interoperability, and literacy are essential to speed up diagnosis and empower patients.
Also available on podcast platforms such as Spotify, Apple Podcasts, Google Podcasts, and many others.
Innovation and Society: The Future of Rare Diseases [🇵🇹]
How can we accelerate the diagnosis, treatment, and inclusion of rare diseases in Europe? What is being done well in Portugal, and where can we improve?
In this SERaro webinar, experts and patient advocates discuss innovation, social impact, and how to turn challenges into solutions.
SER Excecional – ZTTK Syndrome [🇵🇹]
This is a testimony by SERaro patient advocate Andrea Correia, about the discovery of ZTTK Syndrome, a rare and still little documented disease. In this video, challenges, emotions, and hope are shared, highlighting the importance of awareness and support for those living with this exceptionally rare condition
Vidas | André Correia: A Story About Rare Diseases [🇵🇹🇺🇸]
In this episode of podcast “Vidas” (Sanofi), I share my personal story as the father of a child living with ZTTK Syndrome. It emphasizes the need for awareness, empathy, and a more sustainable healthcare ecosystem to support the 300 million people worldwide affected by rare diseases.