Podcast: Rare Mind Talks
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A mother turned global advocate, Ana Rita talks about how her son’s ultra-rare diagnosis sparked a powerful mission. She didn’t wait. She acted. She went from diagnosis shock to launching a research-focused alliance.
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“Patient-Led AI for Better Health” is the focus of this powerful episode with Bruno Amaral, creator of Gregory, an AI-driven bot. Bruno, built Gregory to help patients find relevant, trustworthy research. The bot filters studies for better outcomes. More importantly, it helps patients, doctors and researchers save time by summarising complex findings into clear, useful…
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In today’s episode, our guest Ronald Cornet, an expert in health informatics, explains why inconsistent data causes harmful delays in diagnosis and care. Can data standards unlock better solutions?