In today’s episode, our guest Ronald Cornet, an expert in health informatics, explains why inconsistent data causes harmful delays in diagnosis and care. Can data standards unlock better solutions?

He shows how shared standards, like the FAIR principles, help researchers work together, speed up clinical trials, and improve treatment. We also discuss how collaboration across the ecosystem is essential. Patient advocates must be part of shaping how data is shared and used. Ronald closes with practical steps for hospitals, policymakers, and professionals.

This episode highlights a simple truth: better data leads to better outcomes. And in rare diseases, every step forward matters.

Rare Mind Talks Podcast explores how AI, data, and innovation are transforming healthcare for rare diseases. Hosted by André Correia, a digital transformation leader and rare disease advocate, this podcast aims to simplify complex topics, inspire research, and connect experts to improve lives.

Learn more at https://www.theraremind.com or
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