The Rare Mind

by André Correia

Tag: leadership

  • 11: How to Break Data Silos in Rare Diseases (with Francisco Aguiar)

    11: How to Break Data Silos in Rare Diseases (with Francisco Aguiar)

    In How to Break Data Silos in Rare Diseases, Francisco Aguiar from BI4ALL joins me to explore how data and AI can truly reshape the rare disease ecosystem.

  • 10: Hope and Leadership: Uncharted Lessons (with Ada Lio)

    10: Hope and Leadership: Uncharted Lessons (with Ada Lio)

    In this episode, I talk with Ada Lio, mum of Lukie, founder of lukie.org, and board member at the ZTTK Son-Shine Foundation. Joining me from Boston, Ada shares her perspective on hope and leadership in rare diseases, offering uncharted lessons from her journey as both a parent and a leader in the community.

  • 09: Treating the Patient, Not the Disease (with Richard Novak)

    09: Treating the Patient, Not the Disease (with Richard Novak)

    In this Rare Mind Talks episode, I sit down with Richard Novak, CEO of Unravel Biosciences, to explore how RNA provides real-time insight into the body’s actions, while DNA remains static. With the motto of treating the patient, not the disease, this shift in approach changes how we understand rare diseases.